Today was Em's 5 year well child appointment. I had a whole list of things I wanted to discuss, my main concern obviously being her symptoms. I have never brought in a written up list of her history and symptoms, just explained it when I got to the office. Today I was much more prepared. I think her doctor was kind of shocked when I pulled out the giant list. I had her symptoms, her history, my concerns, my questions... FINALLY I GET TAKEN SERIOUSLY!!!
We're starting at a cbc to check for anemia since she is showing some symptoms. He also had blood drawn for a complete celiac screening. If this all comes up negative, then we'll go from there, but at least it is a start! Now he's seen how it is really an issue and interfering with her life to a degree that it needs to be fixed. Her recovery between flare ups is taking longer than it used to, she's just not bouncing back as quickly anymore. The poor girl is always so tired.
After she gets through all of this, she will have an EKG to check on her heart murmur and see what that is doing. That's pretty low on the list right now though.
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